6 Comments
Apr 18, 2022Liked by Jessica Craven

Not sure if there's a better way to suggest actions than posting here. I'm a paid subscriber and I try to do an action every day. I am deeply grateful to you and awed by all you do.

It's come to my attention that the Centers for Medicare and Medicaid services have provisionally denied Medicare access to Aduhelm, the new FDA-approved Alzheimers drug, providing it only to people in clinical trials. This came to my attention from our local Black newspaper, which is of course pointing out the disproportionate effect of this decision on BIPOC people: https://www.postnewsgroup.com/opinion-alzheimers-drugs-decision-has-deeper-impact-on-health-of-blacks-other-minorities/

The Alzheimers Association has a tweet-to-the-President campaign (https://p2a.co/RB4lWtg) and also suggests calling your congresspeople. I would like to see some group with a stake in this organize a petition, and I would certainly like to see you highlight this as an action worth taking.

Thanks for thinking about this.

Debbie Notkin

kith@spicejar.org

Expand full comment
author

An excellent idea! I will put it in tomorrow's newsletter!

Expand full comment

take some time and come back refreshed. We all need each other.

Expand full comment

A much deserved vacation! Enjoy!

Expand full comment

Have a wonderful break. Enjoy!!! You deserve a wonderful vacation. I really appreciate you and all the work you do.

Expand full comment

Have a wonderful break! Bottle some and bring it back(if only!)

Expand full comment